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2. The Properties of DNA

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Chapter Summary

This chapter examines whether the assertion underlying the UNESCO Declaration is correct. It first discusses Gene-Angst, that is, the widespread belief that "Genes 'R Us" and the associated concern that genetic information may be abused. Then, the chapter describes the background, the purpose and the scope of the Declaration as well as the reasons set forth in the Declaration as to why genetic data are special. Next, it presents a typology of genetic data followed by a discussion of the genetic exceptionalism debate. Subsequently, the chapter analyzes the implications of the Declaration for the collection, storage and use of blood, genes and medical data. The chapter ends with some concluding remarks.

Keywords: DNA; Gene-Angst; medical data; UNESCO Declaration



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