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5. DNA as National Property

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Chapter Summary

This chapter discusses the summary of the mechanisms used in three selected human genetic research databases (Biobanks) to determine how they link with commercial interests. The selection comprises the Icelandic Health Sector Database, the Estonian Gene Bank and the UK Biobank, both because these databases are well documented and because they represent three conceivable models for linking with commercial interests: for profit (Iceland), not for profit (UK) and mixed databases (Estonia). The chapter focuses on the summary of how these databases deal with ownership of data and research results, intellectual property, licensing of commercial opportunities, benefit-sharing and the disposition of assets in the event of business failure or sale. To put the various mechanisms in perspective, the summary is preceded by a brief comparison of each respective model and its funding.

Keywords: DNA; Estonian Gene Bank; human genetic research databases; Icelandic Health Sector Database; intellectual property; UK Biobank



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